What do physicians think about intellectual disability?
Alice Bacherini, MA, University of Perugia
Susan M. Havercamp, Ph.D., The Ohio State University - Nisonger Center UCEDD
Giulia Balboni, Ph.D., University of Perugia
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INFORMED CONSENT TO PARTICIPATE IN RESEARCH
Your participation is voluntarily. Please consider the following information carefully and feel free to ask questions before making your decision whether or not to participate. If you choose to participate, you can leave the study at any time without giving an explanation or incurring any cost.

PURPOSE:
Adults with intellectual disability show a larger number of health problems compared to general population. However, disparities in the healthcare access for adults with intellectual disability are reported. Physicians’ attitudes toward and beliefs about adults with intellectual disability are important to promote healthcare access for this population.
The purpose of this study is to explore the perspective of healthcare providers, disability professionals, and family members of children or adults with intellectual disability about the healthcare experience of adults with intellectual disability. Participants will be asked about their impressions about physicians, and about physicians’ beliefs on intellectual disability.

ELIGIBILITY CRITERIA:
We are looking for adults, 18 years or older, who are disability professionals (e.g., direct support professionals, case managers or other support professionals) or healthcare providers (e.g., physicians, dentists, nurses, psychologists) working in the field of intellectual disability, or family members of children or adults with intellectual disability. Please note that only one person per family can participate in this study.

PROCEDURE:
Participants will be asked to respond to a survey about what they think physicians believe about adults with intellectual disability.  

DURATION:
About 30-40 minutes

CONFIDENTIALITY:
Your responses will be completely anonymous. No identifying information or IP addresses will be collected, in accordance with the Regulation of the European Parliament 2016/679. When published in scientific journals or presented at conferences, aggregated findings will be shared.
The Regulation of the European Parliament 2016/679 protects fundamental rights and freedoms of study participants, particularly their right to the protection of personal data (for this research: gender, age, residence, race, ethnicity, education, job), which will be collected for the above specified purposes and processed lawfully, fairly and in a transparent manner, and ensuring appropriate security of the personal data.
This study has been approved by the University of Perugia’s Bioethical Committee (N. 98826, November 12th, 2020).

COMPENSATION AND COSTS:
You will not be paid for participating in this study, nor will you incur any costs.

CONTACTS AND QUESTIONS:
For questions, concerns, or complaints about the study, you may contact Alice Bacherini at alice.bacherini@studenti.unipg.it
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